Advocacy days for the Pancreatic Action Network has come and gone. We got to talk with some of our leaders and everyone seemed receptive to our message: We need the National Cancer Institute to develop a strategic plan (logic model) describing how NCI is going to deal with the increasing prevalance of the most deadly cancer.
MaryBeth insisted that I ride in a wheelchair because of all the walking and despite my grousing, she was right. I was exhausted just talking at the 5+ meetings we had.
I found that I was in a unique position at Advocacy Days this year. I am a survivor, but I think I was the only survivor there who was also dealing with an active recurrence of the disease. I’m not sure people knew exactly what to do with me. Do they say congratulations on beating the beast or , “You did it once, you can do it again!!’
The content for the Advocacy Days was essentially the same as last year: try to get you legislators to agree to cosponsor either the house or senate version of the Pancreatic Cancer Research & Education Act. Exciting this year is that we got to meet with several of our congressional members rather than their legislative assistants.
On the health front, it’s just so disappointing that I NEEDED a wheel chair while in DC; or help carrying the bags up t my room. I said this once already, this round of fighting PC certainly makes me feel like a cancer patient (but I’m certainly not ready to die yet). As in the beginning, though, my game plan is pretty much the same: Take each day and live life to its fullest. Spend lots of time with the family making memories (and then on the yucky side, MB and I need to do a better job preparing for the future — transitioning from my paying bills to her doing so.