…and then there were 2

Hey y’all.  I cannot begin to tell you how excited as I get closer and closer to Thursday – my last day of treatment.  As I mentioned early on, I was treated with IMRT (intensity modulated radiation therapy) + chemo therapy (5FU — I *still* want to say FU at least 5 times…a day).

IMRT, is a state-of-the-art radiation delivery system that can treat difficult-to-reach tumors with new levels of accuracy such as tumors by using higher radiation doses than traditional methods would allow in vulnerable areas, while sparing more of the surrounding healthy tissue, compared to standard radiation therapy. For example, a tumor that surrounds your spinal cord [or the portal vein] can be effectively treated with IMRT, with very little radiation reaching your cord.

Two ways that IMRT differs from conventional radiation are:

  • IMRT employs a powerful, advanced computer program to plan a precise dose of radiation in three dimensions, based on individual tumor size, shape and location;
  • IMRT directs radiation at the tumor and modulates the intensity of pencil-thin beams of radiation with laser accuracy.

From cancercenter.com

The image to the right displays four radiation beams from different directions.  The red area represents a tumor.  The graphs represent how the intensity (higher amplitude represents stronger intensity) of the radiation beam changes as the beam moves from one part of the tumor to another.

IMRT TableDr. Landry, my oncology radiologist, worked up a treatment plan which called for 14 radiation beams from 8 different directions.  To do this, every weekday for the last 5 weeks, I would lie on a table like the one to the right and the radiation machine would rotate around me.

I have 2 more treatments and then I’m done.  The question on everyone’s mind, then is: “Merle, you’ve just finished chemo/radiation treatment.  What’s next?”  Well, I wish I could say that I’m going to Disney World, but that’s not in the cards (at least, not for the a while, but shhhh…don’t tell the kids)!  Instead, I’m going to have a party.

For those of you who do not know, I grew up in Maryland (first in Pikesville and then in Easton).  While in high school, I worked at several seafood restaurants in Oxford, MD, including The Robert Morris Inn, Pier St. Marina & Restaurant, and the Town & Country Marina and Restaurant.  During my time in and around Easton, I developed an incredible appreciation (and appetite) for steamed and seasoned Maryland blue crab.

Thus, my party will be a great big crab feast.  I’m going to order a bushel (approximately 6 dozen) of crabs to be shipped down to me here in Atlanta.  We’ll reheat the crabs, boil some corn and shrimp; get a pony keg of (good)  beer (and lemonade for those who chose not to partake) and have a feast.  Friends and family will be invited, but I’m claiming a full dozen crabs for myself, so anyone who snoozes (and is not there when the party begins) may very well miss out on the crabs.

I feel incredibly lucky that I have not had any serious side effects from my treatment.  I have been able to (more or less) work over the last 5 weeks and am looking forward to working more steadily over the next couple of weeks.  I’m also looking forward to getting back to exercising again (I have had to curtail my exercising because during the week I had bandages on that could not get wet/sweaty).  And before you can say it, YES! I will be careful not to push myself (too much)!

Until next time.

Merle

Pre-Monday jitters??

Well, today was less than a good day for me.  I had trouble sleeping and ended up getting up at 6a.  This afternoon and into the evening, I have been feeling less than optimal.  I’m feeling as I have on the past couple of Tuesdays: tired, nauseous, and generally yucky.

Be that as it may, tomorrow is the first day of the last week of treatment.  I finish this coming Thursday — YEAH!  Party to follow, to be sure!

Thank you to all the Hamburger Helpers out there!  You continue to be a source of strength for me.

Merle

Back in one piece

Nothing of great import to report.  The boys and I survived boy scout camp (though, after showing my wife some of their clothes, MaryBeth questioned whether the boys left any of the dirt AT the camp).  One would think that spending the last couple of days essentially walking about camp and spending time time in rocking chairs would not be all that tiring, but I’m wiped.

It was a good trip and I am really glad I was able to go.  I’m really pleased at how well I’ve handled treatment thus far.  One more week and I’m done with this phase.  I have to say, though, there is part of me that remains a tad bit concerned at my lack of side effects from the treatment.  It’s hard not to think sometimes that perhaps the treatment is NOT working given my lack of side effects.  Though, as one friend pointed out to me that is tantamount to a pregnant woman saying, “I am not having morning sickness, so I must not be pregnant.”  I’m sure everything is going well.  I guess we’ll find out on July 24.

Hope you had a great 4th of July and are having a great rest of the weekend.

Merle

Happy Fourth of July

Hello all.  I’m sorry for not writing yesterday (GADS! Good thing it’s a new month or people would start yelling at me for not writing enough!) ;-)   Last night I drove up to the mountains of North Georgia to be with my sons during the last part of their boy scout camp.  The weather here is fabulous — a little warm during the day, but it was nice and chilly this morning (the kind of chilly that makes you want to snuggle down in your sleeping bags and enjoy its warmth — unfortunately, the cot I’m “sleeping” on is not particularly comfortable, so I opted for getting up around 6a this morning).

Yesterday and again today, I was thinking about how nice it is NOT to be connected to a chemo pump during these little bouts of freedom I’ve been having over the last couple of weeks.  It seems appropriate that one of my times of freedom coincides with the Fourth of July.  The old saying is true: “You do not appreciate something until you no longer have it.”  Having spent 24 hours a day, 4 days a week (for the last 5 weeks) connected to a chemo pump, I very quickly came to appreciate the simple joy of NOT having to tote around the pump, of carrying my fanny pack where ever I went (and I mean — WHERE EVER)!  Sure I could take it off, but then I still had to stay within 3 feet of the pack (as that is as far as the tubing would reach).

At the end of next week, I will be done with this phase of my treatment.  I will still have weekly onocological visits, but until July 24, my time will be relatively free.  I hope that moving forward I continue to remember what it was like to be connected to my pump, so I do not begin to take for granted the freedom of not having it.  Similarly, I hope that we all take a moment to appreciate whatever freedoms we enjoy.  (Some day I’ll post about the number of visitors I have had from a variety of different countries.  How they all get here, I’m not sure, but I continue to be humbled that so many people are interested enough to click through to my site.)

Be safe this holiday weekend and have a grand ole time.

Merle

Baltimore here I come…

One would think that the day I start with the Chemo would be my roughest day, but twice now, the day AFTER I start my weekly chemo has been the rougher of the two days.  I spent much of yesterday feeling queasy and not really up to par.  My anti-nausea medication (Compazine) is prescribed for up to 4 pills a day and yesterday I took all 4.  Today, however, I feel fine (though, I have been somewhat cautious with what I have eaten).

What’s interesting is that in the beginning, I was counting the number of radiation sessions I had and how many I had left.  Now I am just counting the number left (which, for those of you keeping score at home) is FIVE!!! That’s right, I have a session tomorrow and then FOUR next week and I am DONE, baby!  Woo Hoo!  I am particularly excited that tomorrow I also get my chemo pump taken off (the clinic is not open on Friday so instead of drawing it out until Saturday, we decided to speed it up and disconnect me tomorrow!  You know what that means?!?!  Essentially FOUR WHOLE DAYS of chemo/radiation free happiness!  :-)

So you may be asking yourselves, “Merle?  What happens next?”  Well, I’m glad you asked.  For two weeks after my radiation therapy ends, I have some down time (I think — I’ll come back to that in a moment).  I have a “re-staging” CT scan scheduled for July 24.  A re-staging scan is simply a CT scan in which the docs will look at what has happened to my tumor.  Hopefully, the tumor will have shrunk and all is well in the world.  If not…well, we’ll jump off that bridge when we get to it!

I have an appointment scheduled for July 28th with Dr. Sarmiento, my surgeon here in Atlanta.  We will talk about his perceptions of my candidacy for surgery.  I will fly up to Baltimore on July 29th and meet with Dr. Cameron at Johns Hopkins on July 30th to get a surgical 2nd opinion.  Then I will decide (in consultation with both surgeons) where would be best for me to have my surgery (notice the positive thinking).

Now, I said “I think” I’ll have some down time.  My sister reminded me that about 8 weeks ago, I had a stent put in to keep my bile duct open.  Well, guess what: the stents only have an 8-10 week life span.  I think I was hoping I would be a candidate for surgery before the stent time limit was reached, but realistically, the 10 week limit is right around the time I meet with Dr. Sarmiento.  So, when I talk with Dr. Kauh (my oncologist) on Monday, I will ask about whether I need to schedule a 6th ERCP procedure to replace the stent.  Woo Hoo!   I know, don’t you just wish you could have this many procedures?!?!?

Stay tuned!

Merle

Inconvenience or Crisis?

Sorry about not posting last night.  I was at the hospital until 1p (more about that in a minute) and then I went to work.  The end result was that I was particularly tired when I got home.  I ate dinner and went to bed.  <sigh> I’m becoming such a lightweight!  (I know! I know!  Radiation and chemotherapy….blah…blah…blah!  I have work to do, I don’t have time to be afflicted by treatment (side) effects.

So, my oncologist had the nerve to take a vacation this week (what was he thinking?)!  As a result, my ‘normal’ schedule at the hospital changed a little.  The idea (as I understood it) was that I would have my radiation, then get my labs, have my chemo pump attached and then I’d have an appointment with the nurse practitioner today. Apparently, the person who was scheduling my appointments, though: (a) forgot to order the labs and (b) left my ‘chair time’ to get my chemo pump as if I had an appointment with the oncologist.  Well, someone was able to call in an order for some basic labs (CBC and DIFF) and then I sat and waited….and waited…and waited.

You see, I get done with radiation around 8:15a.  After a short wait, I went for my labs and was done around 9:15a.  I then took a seat and waited for  2 1/2 hours until I was taken back to ‘C’ bay to have my pump attached.  Of course, once I got there, I had to wait some more for the pharmacy.  As I said, a lot of waiting. Today was a challenge, too.  The person who thought it was okay NOT to order labs yesterday, put in the order today, so I got to get stuck AGAIN!

As I have mentioned previously, a wise friend told me long ago (when I was over-reacting to some life issue) that it is helpful to consider whether something that is bothering me is an inconvenience or a crisis.  An inconvenience maybe upsetting, but it’s really only an annoyance.  A crisis is a real emergent problem, the results of which could potentially be life altering.  I can honestly say that, right now, my cancer is an inconvenience — a HUGE inconvenience to be sure, but I’m not currently in a state of crisis.  I have a great support system and doctors that are working to help me get better.  At some point, my health may more to crisis, but it’s not there yet.

When you find yourself obsessing over some life event, take a moment to consider whether yours is a crisis or an inconvenience.  I have found doing so has been really helpful in dealing with things that were upsetting me.  Consider this my paying it forward!  :-)

Merle